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posted by cwitch
07 August 2015

Still checking in

Last reply: 01 March 2016 11:50
Hello, just to say a year on and I still check in on this website with totally admiration for patients, their families & nursing staff. The cancer journey is a very difficult one & I think of all the Irish people on this journey, people I do not know but people that I understand how it is for them. Take care everyone.
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posted by worriedrelative
11 August 2015

Two questions?

Last reply: 19 August 2015 10:40
How long is the wait for chemo? relative met with oncologist almost 3 weeks ago and no sign of appointment yet. It's 5 weeks post surgery. Getting concerned now - that it will recur in that space of time Secondly, the surgeon said they got all the cancer, and that they were doing the treatment to prevent recurrence. Does this mean the cancer is gone? Our main worry is that there are some rogue cells flying about and that the wait for chemo might mean they have a chance to multiply and spread.
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posted by Trishmary
21 August 2015

Looking for help- grief

Last reply: 17 September 2015 22:17
Hi, I am new to this message board but am looking for help. I Lost my mum to breast cancer, it is coming up to the fourth year anniversary and I am still lost in grief, what is wrong with me, I know part of it is that I cant accept that she is gone I so dont want her to be
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posted by Lizton
22 August 2015

Pressure in Left boob

Last reply: 25 August 2015 15:02
Just looking for some advice please. I was diagnosed with DCIS in my right breast last May. I had two surgeries some lymph nodes removed which were clear thank goodness. Followed by radiotherapy. My most recent mammogram was in March. I also had a check up by my surgeon in July. But I am now experiencing pressure, not pain in the same area where the DCIS was but on the other breast. I am wondering if my mind is working overtime and if I am worrying for nothing. I didn't notice any pressure or soreness before finding the lump on the right side.
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posted by Irish Cancer Society
24 August 2015

Community Guidelines

The Irish Cancer Societyonline community is a welcoming and supportive place where people affected by cancer and those close to them can find information and support, ask questions and share information or personal experiences of their cancer. To help keep this community an inclusive and safe place for active and supportive discussion, we ask that all of our users follow these simple guidelines. Our community forum guidelines  Who can join the discussion? Who can register? The forum is aimed at anyone who is affected by cancer. However, other people may register too, as long as your posts remain relevant to the issues. For the protection and safety of children, this forum does not support members under the age of 18. Using the forum We ask users to be kind and respectful to others Be supportive and kind to each other - Many people sharing on the forum are going through difficult times. A few words of kindness can be very helpful and supportive. Please focus on showing support and always be sympathetic to other members’ feelings.  Respect and be sensitive to the opinions of others - A wide range of people with very different experiences may use the forum. Differences and debate may occasionally arise. Please make your points politely and respectfully and you can agree to disagree if you have differing opinions.  Give each other the benefit of the doubt-It can be very easy to misinterpret other people’s comments, especially when read or written in haste. Sarcasm and humour are particularly easy to misunderstand.  Don't post any content that treats anyone unfairly-On the grounds of their sex, sexual orientation, race, colour, nationality, ethnic or national origin, religion or philosophical belief, disability, gender identity/reassignment, marital status, family circumstance or age; or anything that is threatening, obscene or in any way offensive. Do not use bad language or swearing - or use language that others may find abusive or offensive. If you think someone is being aggressive or deliberately provoking others, please use the ‘report’ button to alert the moderators and then simply ignore them. Don’t use all capital letters in your post - this is understood as ‘Shouting online’ and may offend others. Privacy and safety  Protect your privacy: This forum is public and your posts may appear in internet searches, only your profile and private messages are private. Please be careful with your personal information. Don’t use your real, full name (or email address) as your username and do not post your contact details on the forum, like real name, address, email, phone number (We will remove them). Keep your password private. Respect the privacy of others - Please do not ask other users to post their personal information such as home addresses, telephone numbers, or email addresses, and do not pressure anybody into revealing information about themselves that they may not be comfortable with. Be careful - please be careful about who you give your information to through private messaging. Think about your safety when arranging to meet people you have met on the forum.  For the protection and safety of children, this forum does not support members under the age of 18. Keeping it legal • Please do not identify specific healthcare professionals - (especially by name) who are treating you, or particular hospitals or GP surgeries – publishing that information could be considered libel. Respect copyright -Only post your own content, otherwise you could be infringing copyright. This could include poems, stories, and reports. No soliciting The Irish Cancer Society Online Community is primarily for people affected by cancer to support each other – not for advertising products or services, finding a source to interview for a news story, or for recruiting research subjects to take a survey. It is also not intended for advertising fundraising or soliciting donations. These types of posts will be deleted. For fundraisers, please contact us on social media or our fundraising team at fundraising@irishcancer.ie. No commercial solicitation - this includes promoting web addresses, products or services and medical institutions for commercial gain. These will be treated as spam. Keep it relevant and honest. Transparency Please do not create multiple accounts or pretend to be someone else. Tell the truth about your experience and intentions- Make sure you always post from the same account so that others can get to know you.  Language Write your posts in English This is because we are not able to moderate posts in other languages at present. It is also important to make sure that all members can understand each other’s posts and support each other. No medical advice Sharing experiences is at the heart of the forum - so please be careful not to give medical advice.  Information provided via our community is not intended to replace or be a substitute for the advice and services of professional experts, but rather to provide signposts towards further information and support.  Complementary therapies and alternative therapies Complementary therapy is a type of treatment used alongside conventional treatments to improve quality of life. Complementary therapies do not influence the cancer itself but some can help to alleviate symptoms and the side effects of conventional treatments. When discussing complementary therapies, you may; Advocate the use of complementary therapies alongside conventional treatment; Make evidence-based claims about the effectiveness of complementary therapies in improving quality of life  When discussing complementary therapies we ask you not to: Advocate using any complementary therapy as an alternative to conventional treatment;  Claim that any complementary therapy can cure cancer, reduce the size of tumours or in any way treat cancer;  Advise anyone to ignore medical experts’ advice on the use of any treatment whatsoever;  Advertise any complementary therapy for commercial gain.  Alternative therapy Alternative therapy tries to treat cancer using unconventional methods instead of usual medical treatment. When discussing alternative therapies, you may: Provide anecdotal accounts about alternative therapy use, as long as you do not make claims about their effects. When discussing alternative therapies, we ask you not to: Advocate the use of any alternative therapy;  Promote any alternative therapy.  Claim that any alternative therapy can cure cancer, reduce the size of tumours or in any way treat cancer;  Advise anyone to ignore medical experts’ advice on the use of any treatment whatsoever. Suicide and self-harm All mentions of intention to commit suicide, assisted suicide or self-harm will be removed from the site. Expressions of thoughts and feelings may arise for some people from time to time about these issues which can be expressed. It is not your responsibility as another poster to offer counselling. If you are worried about another member please refer the member to our Support Line on 1 800 200 700 or The Samaritans on 1850 60 90 90. We take these messages very seriously and will offer members guidance to appropriate support and advice. Moderation The team moderating the forum consists of Irish Cancer Society staff and our aim is to keep the forum safe, legal and supportive. We do not approve every post before it goes live. This is why we need forum users to take responsibility for their own postings, and to report inappropriate posts. When you contact us, you should expect a response within 3-5 days (it can be sooner). If you report a post, we will usually let you know what action we have taken.  If you breach our guidelines, you will usually get a warning, or be placed under moderation (this means all your posts need to be approved by a moderator before going live). If you continue to breach the guidelines, we will ban you permanently from the site. We issue permanent bans only as a last resort to protect our forum community. The role of the Irish Cancer Society moderators is to help keep the forum safe and constructive for the benefit of all members. In order to do this we may if the need arises: Edit a post-We will usually let you know when we do this and why. It is most often to delete swearing or personal information. Move a post or thread - to an area of the forum where it is more appropriate. Delete a post-We will usually let you know when we do this and why. It is usually because of a breach of our guidelines. • We may contact you - by private message or email to make suggestions, or issue a warning. Place users back in moderation (so all posts must be approved before going live). Ban users Close a thread - If a healthy discussion breaks down into an exchange of attacks and insults, or becomes too heated, we might close a thread to end the discussion and encourage people to move on. Post - Occasionally we will post a message to users of the online community, for example when looking for feedback on our service.  Cancer Information Service of the Irish Cancer Society The Cancer Information Service of the Irish Cancer Society is dedicated to providing high quality, expertly developed information about cancer. You can find cancer information on Cancer.ie or speak to a specialist cancer nurse on our Support Line freephone 1800 200 700. The Support Line is open Monday to Friday 9am-5pm. You can also email us on supportline@irishcancer.ie. You can also visit our Daffodil Centres, located in thirteen hospitals nationwide. The centres are staffed by cancer nurses and trained volunteers who provide confidential advice, support and information to anyone affected by cancer.  Please remember views expressed in this community are purely the views of the members and as such don't constitute professional recommendations or advice or the opinions of the Irish Cancer Society. We have the right to update and change our Community guidelines and Terms and Conditions at any time. If you have any questions about these guidelines, or anything on the site at all, drop us an email at webservices@irishcancer.ie and we’ll do all we can to help.
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posted by Avril
31 August 2015

Calling Stage 4 gals

Last reply: 25 February 2016 09:35
Hi All Stage 4 Ladies, Anyone out there and how are you? I was diagnosed with bone mets May 2014[all usual treatments] and wondering if there is a fellow anxious Molly out there? How are you coping? At the moment Bacardi and zanex help me! Less time consuming than juicing! I know there were other ladies out there-Ellie, Lemrac, Deefed, Veronica,Mary B and Debbieb. Would love to hear from someone/anyone! Avril.
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posted by rathcline
07 September 2015

Radiotherapy and bras

Last reply: 28 October 2015 15:35
Any suggestions for what people used for bras during rads? It's uncomfortable underneath but I can't go without. I have one t shirt with built in support which is good . No idea where I'd get another. Got this in UK .
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posted by Pat Fitz
14 September 2015

After Brachytherapy

Last reply: 27 October 2015 11:22
A few weeks ago I had brachytherapy and I hope my cancer has been nipped in the bud. It was diagnosed very early (6 on the Gleason scale). The side effects are kicking in and am peeing nearly every hour during the day but in fairness i am only getting up once or twice at night.. Could this be down to all the water I am drinking . I am also drinking 5or 6 cups of decaffe tea and a couple of de caffe coffees.. Does the decaffe stuff irritate the bladder the same as regular tea/coffee. Would a couple of pints of Guiness in a week or two on the odd evening be bad news?
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posted by Win
19 September 2015

Recently diagnosed

Last reply: 22 November 2015 02:05
Hi there I'm due to have a mastectomy on 25 still coming to terms with it. My question is about the tamoxifen if you remove the ovaries would you still have to take it?
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posted by Happyness
05 October 2015

Shoulder surgery/ no lymph nodes

Last reply: 10 November 2015 19:10
I am wondering if anyone has had shoulder surgery that had previously had a full clearance of lymph nodes on the same side. I had a lumpectomy and full clearance of lymph nodes February 2012 followed by chemo, radiotherapy and Herceptin. I am now on tamoxifen. I had a great recovery with full movement of my right side. I returned to work April 2014. I was put into an administrative role as my previous job was considered too high risk. Within weeks I was in agony with pain in my hand, my arm and my shoulder. I did physiotherapy for months, ended up on pain medication that I could hardly function mentally on. (I have three small kids so being spaced out was not always a solution). Driving caused a lot of pain to the point that by evening I would have to prop my arm up on a pillow to just get comfortable. Physiotherapy and acupuncture helped to keep some movement going and relieve some tightness. Eventually an MRI showed Shoulder Impingement Syndrome. A Spur has developed which is impinging on the tendon that is inflamed, probably from radiotherapy. Being right handed I am quite limited in what I can do now. I have not been able to return to work as they have no alternative for me right now. I have been offered a great job that is nearby but was not certified as medically fit so had to turn it down. I got another phonecall this week offering me another job but I know it will be the same story again. I am on unpaid sick leave now since November last and need to get back to earning an income. I have had steroid injections twice in the last four months to relieve pain with little benefit so the next stage would be surgery to remove the spur and relieve the impingement. The problem is that I have no lymph nodes on that side. I am terrified of going ahead with the surgery for fear of triggering lymphedema. I would love to hear from anyone in a similar situation please.
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