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posted by tattooeme
17 March 2017

My dad

Last reply: 18 April 2017 10:28
Hi my dad has recently been diagnosed with bowel cancer which has spread to his liver they told us he has 3 to 6 months is this true or can he live longer it's killing me to know this and watch him every day knowing he has this I have been told that people can live up to 5 years with a diagnosis like this
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posted by Dave_M
17 March 2017

Support / Counselling after loss

Last reply: 23 March 2017 11:08
Hi all, I want to accompany my dad to some form of support/counselling but am not sure of the options available. My mum suffered from cancer for 5 years and lost her battle in November 2015. Since then, my dad has not sought any support but is ready now. Are there groups or sessions delivered anywhere in Dublin for people who've lost a loved one to cancer? Any advice would be greatly appreciated.
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posted by jacksprat
26 March 2017

Return of Prostate Cancer

Last reply: 13 June 2017 08:19
I have not been on this site in a while..My husband had Prostate cancer back in 2011 , he then had a radical prostatectomy followed by 6 weeks of Radiotherapy.....followed by hormone treatment Zoladex......fast forward five years having not gone to the Doctor for regular PSA checks, he developed flu like symptoms in January 2017 and eventually returned to the Doctors office who had the good sense to do a PSA only to find it is at an all time high of 635, considering it was below .1 after all the treatment 5 yrs ago.....My message to all survivors out there ,,,please please continue to attend for regular tests, it's only a simple blood test to confirm PSA remains at a low level...hence our position has now totally escalated to a serious condition???Last week we travelled to Galway to meet with oncology team as the cancer is now advanced and present in pelvis,lung and possibly in bones....I am still reeling with this devastating news and the effect it is having on the whole family..We have a junior cert daughter and I work full time , We have spent the last two weeks on the road travelling to hospital appointments for consultation,scans and as now in hospital care for the past two weeks we are pretty much full time on the road....John(my hubby) is having difficulty breathing at the moment so once this is under control we shall have him home...He has just started a new therapy drug DEGARELIX/or Firmagon and also his much dreaded and always feared Chemo......I will share this journey with you as there are not many threads on the next phase... When and if the cancer returns and what the next treatments available are.... But most of all I want a lesson to be learnt from our story, this could have been detected earlier if John had of attended his GP who would have seen his PSA was increasing once again and we might not be in the place we are today...Happy Mothers Day to all the strong women..Mothers/wives , who in a lot of cases are the ones supporting and giving all the love and support to a sick family member to get them tru this tough time...
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posted by spudburf
18 April 2017

Bad results from DIEP Flap

Last reply: 26 April 2017 10:14
Hi there, I really need some advice from someone who may have had a DIEP Flap. I had my original surgery 2 years ago and I'm wondering if anyone else has a crooked tummy???? I have had a few procedures in the last 2 years to remove dog ears, fill the breast as it went flat, and scar revision but I still have a stomach that isn't symetrical. Where I had the reconstruction on my left side, it sort of looks like a bulge and my plastic surgeon is blaming everything but himself! He even went as far as to tell me I was overweight (which I'm not!). Is very hard to find information relating to Ireland on the internet so if anyone can offer me any advice I'd really appreciate it as I'm very depressed about it and I thought this would be the best part of the whole 4 years of cancer, mastecomy, etc....
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posted by Mac
12 May 2017

Radical Abdominal Hysterectomy -Ovarian Cancer

Last reply: 16 May 2017 14:58
Hi there, discovered (Ultra sound) 2 weeks ago that Ive a lg grapefruit size cyst on 1 ovary, a smaller -6cm on the other & some smaller ones too. Consultant says he thinks borderline or grade 1. Not sure but Ive to have CAT TAP (thoracic, abdominal & pelvic) scan. It's €500 & VHI only cover it if I'm an oncology patient -so I guess I'm not officially YET -so Ive to pay. Also I'm worried about telling (adult) children who are away- the upset & worry for them. Any observations -suggestions welcome .
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posted by Aliek
13 May 2017

Recently diagnosed

Last reply: 16 May 2017 14:56
Hi there, I am 36 with two young kids currently living in New Zealand. We were planning on moving back to Ireland when I found a lump last month and was diagnosed initally with Grade 2 triple negative but changed to grade 3 ER positive after my mastectomy last week. I had 1 lymph node involved but also has drained to Internal mammary nodes which they could not remove so I will definitely be having chemo and radiation. Flying home next week to get my treatment started but not sure what to expect next. Have had MRI prior to surgery and had CT yesterday. What other tests did you do before they decided what kind/length of chemo you were having? I am anxious about delays in starting treatment. Any advice would be much appreciated x
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posted by Suequatro
16 May 2017

Very worried

Last reply: 22 May 2017 11:28
Hey ladies, Firstly I have not had any diagnosis of breast cancer just been I a whirlwind of doctor after doctor and no answers.. So I now have appointment for breast clinic Monday coming have had chest x-ray today to rule out other possible causes. I have been dealing with very severe outer left breast pain for almost six weeks now shots of pain dart from the outside of my left breast to my nipple and then right to the centre of my chest I get a sudden stab of pain. I have been unable to even sweep a floor and feather like touch leaves me in tears. Infection has been ruled out. I initially went to my GP over a bulging vein in my left breast that only appeared when I lay down felt kind of silly for going bit now I am very glad I did. When she examined me I had little pain she explained she found what they call a mouse lump. She decided to do one last check and when applied pressure to the area I was suddenly in alot of pain. After I left the surgery the pain just shot out of nowhere absolutely crippling me for weeks now. My underarm is quite tender and all that general side of my breast and underarm is obviously swollen. I haven't been able to put on a bra for weeks and have to hold my breath through the really bad shots. I guess I'm writing here to see if anyone has experienced anything like this. Any advice would be very much welcomed. Thanks so much!
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posted by sa1216
17 May 2017

Cognitive impairment/memory loss

Last reply: 22 May 2017 10:52
My mother is recently experiencing varying levels of memory loss and cognitive impairment. I have been told that the reason for this is a bad reaction to the bone injection Denosumab, so they have stopped giving her that. They have also taken her off Pabliocyclib as they plan to begin radiation on the brain, though this is being hugely delayed for some reason by the hospital. Can anyone help me out as to how radiation could possibly help with her memory loss/cognitive impairment? Has anyone had a similar experience or a loved one who has had similar treatment? I only see how it will make it worse.
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posted by Vonmcdonald
28 May 2017

SCLC - what's going to happen

Last reply: 02 October 2017 23:57
My husband was diagnosed with SCLC in November 2016. We were in shock, he went from playing golf on November 22 to getting a diagnosis of advanced lung cancer on November 25th. This was quickly followed by hospitalization on December 11 with pain and dehydration,(lost 15 pounds in 2 weeks). Started chemo, cisplatin and etopiside on December 19, and has had six chemo, ten chest radiation and four whole brain preventative radiation which was finished May 5. He has been hospitalized since May 2 with infections and pneumonia, hes still in as the temp is still going up ....we were shocked, we had this vision that he would be resting at home in May, not sick in the hospital.. We are shattered, and worried, as if this is what is going to happen then how will he survive if he needs additional chemo after the next scans? I'd love to connect with someone who is. going through SCLC, I don't what to expect and I'm worried about his care.
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posted by CLL Ireland
03 June 2017

CLL Ireland

We have established an advocacy group for Chronic Lymphocytic Leukaemia (CLL) patients and carers. Thanks in part to the help provided by the Irish Cancer Society, on 29 April we held the first ever Public Information Day specifically for CLL patients and carers. We were overwhelmed with the support shown and the attendance on the day, with almost 140 patients and carers present! We are trying to reach out to the CLL community nationwide. Make sure you check out our website www.clli.ie, and Follow us on Facebook (www.facebook.com/cllire) and Twitter (https://twitter.com/CllIreland).
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