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posted by LindyLu
09 December 2014

Getting fipple tomorrow

Last reply: 21 January 2015 23:10
My 6 year cancerversary was last Friday 5th Dec....I actually forgot until today! Tomorrow, Dec 10th I get my fake nipple (aka fipple). Have been waiting 20months for this (clearly not urgent). It represents what I hope will be the final chapter of my BC journey (save the tattooing). Will report back in a few days LindyLu
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posted by GlassHalfFull
10 December 2014

Amitriptyline

Last reply: 17 December 2014 23:35
Hi Ladies, I've just been perscribed the antidepressant Amitriptyline by my oncologist. I only filled the script this morning so haven't actually started to take it yet. Only 15mg. It's for lots of things really. I'm struggling 2.5yrs on with my tamoxifen. Just the usual stuff: joint pain, moods (my family are ready to divorce me!!) foggy brain, residual pain in my breast and under my arm from surgery etc etc etc. You all know them. Anyway I'm just wondering if anyone else has had experience of this drug. What I might expect etc. And when it says don't drink do they really mean DON'T DRINK or is it still ok for me to have a glass or two of wine on a Friday night. I've given up so so much in these last 3yrs. I'm not quite sure I'm ready to give up my two glasses of red at the weekends!! I know I should have asked my oncologist yesterday. I was so overwhelmed at being prescribed yet another drug that it went clear out of my head. Cheers Sarah
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posted by Mar63
23 November 2014

Pain after surgery

Last reply: 03 December 2014 00:11
Hi ..Had mastectomy and lymph nodes removed two weeks ago. My arm is hypersensitive if touched, like sunburn pain. Also, If I raise or extend arm, it is very painful on the inside above the elbow, as if muscles and tendons are being/or have been overstretched. Can anyone relate to this. Will this go away soon?.. Doing my exercises for arm but doesn't seem to get any relief .Kind of difficult to describe really, but maybe someone can relate. Thanks in advance. Mar 63
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posted by DeeGlav
06 November 2014

New Lump

Last reply: 12 November 2014 13:27
Hi all I was diagnosed with breast cancer in May, had a lumpectomy and lymph node removal and 20 sessions of Radiation treatment which was horrific as I burnt so bad blisters formed had to stop treatment for 2 weeks. Now I have another lump in same breast. Has this happened to anyone else?? Surely it can't be cancer so quick, going to breast clinic on Tuesday to get it checked am so worried
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posted by spudburf
07 November 2014

Joint/bone pain

Last reply: 09 March 2015 19:48
Hi all, has anyone had bone/joint pain after chemo? I finished my chemo at the end of March and I have my last Herceptin treatment on 25th of this month but I have this awful joint pain. My knuckles, ankles, toes, knees, etc all feel as if there are full of fluid and ache all the time. Also my back but I just had a bone density and this confirmed that I have osteoporosis of the spine now! I just want to know if this will last or will it eventually fade? Has anyone had anything similar? Thanks
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posted by greeneyedlou
23 October 2014

DIEP FLAP Reconstruction

Last reply: 26 June 2017 14:54
Hi all, Just wondering if anyone has had the Diep Flap Reconstruction in Beaumont Hospital? I am under Nadeem Adjmal. I saw him during the summer and I am on a waiting list but just wondering if anyone knows how long this list is or waiting times etc??? Would it be any faster if I went privately using VHI? Also any tips on what to pack for hospital too please Really eager to get the reconstruciton done and move on with life. Thanks, Greeneyedlou
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posted by Avril
11 January 2015

To scan or not to scan/stage 4

Last reply: 05 February 2015 11:12
Hi All, I have just finished six months of chemo[Taxol]. because of bone mets. Then had bone scan but oncologist couldn't open disc to read it and then told me that bone scans could not tell if the Taxol had worked or not! Why bother having the scan then? He also told me that I will be beginning a new hormonal treatment this week[Letrozole did not work for me as developed mets while on it.] He doesn't plan to do regular scans as according to him they do not affect eventual outcome and only cause stress! He is going to be 'symptom driven'. Was so shocked to hear this as believed I would be scanned regularly. I was so confused and cried my eyes out for the evening. To add insult to injury have clots on my lung so will be on blood thinning medication for these [an injection every day for six months] Has anyone else had a similar experience? Has anyone else changed their oncologist midcourse so to speak? I know you always want to shoot the messenger, I am mentioning no names and would not, but would really appreciate advice. Anyone out there who just didn't click with their onc? Avril.
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posted by Dubmum
20 January 2015

How many days until hair falls out after 1st chemo

Last reply: 22 January 2015 10:34
I am on day 8 after my first chemo and wondering how long does it take for hair to start falling out. Should I just go and get it shaved off first or wait until I see it comming out and then get it shaved . I'm on AC every two weeks . Any advice would be welcome , Is it better not to see it comming out . I know it's going to come out , I suppose it's the psychological thing of putting off the inevitable
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posted by DavidC
23 January 2015

Sport and Charity Partnership

Hello Everyone. My Dad passed away from Stomach Cancer 3 months ago. I am using this forum to promote my proposal, which I posted yesterday on http://www.boards.ie under Sport - GAA. This involves a partnership between Sport and Charity. This needs to be led by the Sporting Organisations and I am asking readers to take the time to follow the link below or go to http://www.boards.ie and search for "GAA Charity League Trophy Proposal" and discuss ways that sport and charity can combine for their mutual benefit. “What we do for ourselves dies with us. What we do for others and the world remains and is immortal.” Albert Pike. http://www.boards.ie/vbulletin/showthre ... 2057366628
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posted by Resolute
06 February 2015

Tamoxifen side effects & Clonidine

Last reply: 18 February 2015 21:32
Hi there, Hope you're all doing well! I haven't posted in a while and I'm just wondering if anyone else out there is taking Clonidine to help with hot flush side effects of Tamoxifen? I was prescribed them about ten months ago and took them for three weeks before giving up (my family thought that they were affecting my mood !) but the hot flushes have gotten soo bad now that my doc wants me to try them again.. Any feedback would be great . Thanks Resolute x
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